Seaton girl’s wish for a life-changing bike to allow her ‘to experience pure joy’

A fundraising appeal has been launched to grant seven-year-old Seaton girl Jaydi Hawker’s wish for a life-changing bicycle.

The Seaton youngster, who was born with ligase IV microcephalic primordial dwarfism – a condition affecting her growth – means she cannot ride a bike like other children her age.

Jaydi, who resembles a four-year-old in size, has been dreaming of her own specially-adapted trike, telling her mum ‘that looks fun’ when she spots other kids riding bikes near her home.

For little Jaydi, an adapted trike to call her own will open up a world of opportunities and allow her to experience pure joy…

She is appealing for help raising around £500 needed to buy an adapted bike.

The children’s charity Children Today recently awarded the Seaton family a £1,000 grant to help with the cost of the equipment. But the family still needs to find a further £491 to fully-fund Jaydi’s life-changing trike.

An online donation page has been set up to raise the funds, with any extra cash going to the Children Today charity to fund equipment for other youngsters in need.

trike

A fundraising appeal has been launched to grant seven-year-old Seaton girl Jaydi Rose Hawker’s wish for a life-changing bicycle like this one she tried out earlier this year.
Photo: Lisa Hawker.

Mum Lisa said her daughter has a ‘real zest for life’, wants to join in with bike riding fun, but her size means she cannot balance by herself.

Lisa said the family has been using a plastic toddler bike for Jaydi, which her daughter ‘loved’ but could not ride without mum holding on, which was ‘dangerous’.

The Seaton resident said: “There’s a walkway near our house, through wetlands, and she loves it down there.

“She sees other children on bikes and has started to show an interest in what they’re doing.

“She looks at them like ‘ah, that looks fun’ and ‘why can’t I do that too?’.”

Lisa added: “I think the trike will give her some more independence and to get to have those experiences which other children may take for granted.”

Seaton

The youngster, who was born with ligase IV microcephalic primordial dwarfism – a condition affecting her growth –  means she cannot ride a bike like other children her age.
Photo: Lisa Hawker.

Jaydi’s mum said the special bike will allow her ‘happy, very mischievous and carefree’ daughter to relax and enjoy herself in a safety.

Lisa said: “Jaydi’s occupational therapist put me in contact with the supplier who came out during the end of the first lockdown and she had a go sitting on the trike outside.

“They showed us how it works and which one would be most suitable for Jaydi. She needs the support of being strapped in and it’s much sturdier than her plastic bike.

“She had her feet on the pedals and a big grin on her face. She sat on it like Lady Muck.”

Lisa added: “Another great thing about the trike is that it has a handle so I can help steer her and there’s the option of moving the pedals out of the way when her legs get tired so she can have a rest and I can push her along.

“Because she will not grow much more, I expect it’ll last forever.”

Young Jaydi is tube fed, has glaucoma, cataracts and craniosynostosis – a rare condition preventing her skull from growing when she was a baby.

Mum Lisa said her daughter, who has also undergone a bone marrow transplant, is full of energy and can go ‘full pelt for seventeen hours a day’.

Hip dysplasia means Jaydi runs instead of walks. She is prone to falling into things because of her limited eyesight.

Lisa said: “She’s so active – so the trike will help get rid of some of that physical energy and will hopefully build up the muscles in her legs too, which will be amazing.”

Emma Prescott, charity director of Children Today Charitable Trust, said: “The specialised equipment we help fund for children like Jaydi can have a huge impact on not just the child’s life but their loved ones too.

“For little Jaydi, an adapted trike to call her own will open up a world of opportunities and allow her to experience pure joy with a piece of equipment that will most likely last her for life.

“The trike will give the pair the freedom to go out for much-needed exercise and fun.

“As it will be adapted to suit her needs, the family will have the reassurance that will mean she can ride safely and with ease.

“We’ve set up an online donation page to fund the remaining amount for Jaydi’s life-enhancing trike.

“Any funds raised over and above what we need to provide this equipment will go towards helping fund vitally important equipment for other vulnerable children.”

Seaton

The children’s charity Children Today recently awarded the family a £1,000 grant to help with the cost of the equipment. But the family still need a further £491 to fully-fund Jaydi’s life-changing trike.
Photo: Lisa Hawker.

To make a donation to help fund Jaydi’s much-needed adapted trike see here.

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